International Union for Circumpolar Health Ministry of Public Health and Social Development of RF Russian Academy of Medical Sciences Siberian Branch of Russian Academy of Medical Sciences Siberian Branch of Russian Academy of Sciences Medical Polar Fund “Science” The Northern Forum

Тезисы докладов

Этнические особенности здоровья северных народов

Most countries and most professional organizations have ehtics codes setting out guidelines to protect human research participants.

Codes of research ethics generally protect indiviudal participants. Researchers must ensure minimum standards, including that participants are fully informed of the purpose of the research, and of what will be expected of the participant, and that they remain anonymous and that all data remain confidential.

Research results have implications for communities as well as for individuals; however, few ethics review communittees require community consent. Some indigenous communities in Canada have developed thier onw research committees, asking questions about the value of outside researchers conductng research amongst their people or within their jurisdiction.

Some communities have embraced principles advocating for ownership and control over data gathered from indigenous people (Snarch, 2004).

Challenges are arising with the various new ethics review committees being developed. For example, there has been confusion over differing types of data (e.g., raw or aggregate) and confidentiality regarding these data. In addition, some when university ethics codes confict with indigenous community ethics codes, making academic-community research partnerships difficult. Other challenges arise over the tiered level of consent (e.g., Band Council and individual) when individuals want to participate in a resarch project whtile their Band Council or other governing board, has not approved it.

This paper discusses advances in research ethics in indigenous communities

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